Being a Prader-Willi syndrome (PWS) caregiver is a wholehearted endeavor. We’re committed to celebrating the #PWS community not only during #CaregiverAwarenessMonth but every month of the year. Tammie reflects on what brings her profound joy in her caregiving journey: “Being a PWS Caregiver is exhaustingly satisfying and fulfilling. Climbing those mountains together is often challenging. However, when you see them succeed, win or fulfill a dream, all of the frustrations melt away and your heart is full once again.” Learn more about #PWS at Support4PWS.com and download our toolkit to spread awareness in your community. #CaregiverAwarerness #PWSAwareness #Support4PWS
Soleno Therapeutics, Inc.
Pharmaceutical Manufacturing
Redwood City, California 13,430 followers
We believe in science, advocacy & community, striving to make a real impact for those affected by rare diseases.
About us
At Soleno Therapeutics, we believe in the power of science, advocacy, and community. We are honored to stand alongside the Prader-Willi syndrome (PWS) community and are committed to making a meaningful difference in the lives of those impacted by rare diseases. The first and only therapy for the treatment of hyperphagia in #PraderWilliSyndrome received FDA-approval in March 2025. For more information, please visit soleno.life.
- Website
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https://soleno.life/
External link for Soleno Therapeutics, Inc.
- Industry
- Pharmaceutical Manufacturing
- Company size
- 51-200 employees
- Headquarters
- Redwood City, California
- Type
- Public Company
- Specialties
- Biopharmaceuticals, Therapeutics for the treatment of rare diseases, and Pharmaceuticals
Locations
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Primary
Get directions
100 Marine Pkwy
Suite 400
Redwood City, California 94065, US
Employees at Soleno Therapeutics, Inc.
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Mark W. Hahn
Life Science/Pharma Executive, Board Member, Audit Chair
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Jim Mackaness
CFO & COO | Technology & Healthcare
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Lauren Budesheim, MSOD,SPHR
Strategic Human Resources Leader
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Mayank Misra
e/acc | Speaker | Advisor | Biotech Commercialization and NPP expert, VP Commercial Strategy, Digital, Insights, Data & Analytics, Marketing Science…
Updates
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We’re inspired by the creativity and passion within the Prader-Willi syndrome (PWS) community. Congratulations to this year’s FPWR Artist of the Year, Dinah, for bringing hope and color to the cause. #Support4PWS #FPWR #SolenoTherapeutics
Congratulations to this year's Artist of the Year- Dinah White! Her piece was titled: Ripples "When Dinah was diagnosed at birth with Prader-Willi Syndrome, my greatest fear was that she wouldn’t be able to enjoy life. I had no idea she would turn out to be more capable of joy than anyone I’d ever met. Finding treatments for irrepressible hunger and other ills of Prader-Willi Syndrome is so important. One day, these treatments will allow people like Dinah to be spared the suffering they now face while they continue to fill the world with their amazing joyfulness.” Thank you to everyone who participated in this year's Art Auction and Artist of the Year Competition!
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To all the Prader-Willi syndrome (PWS) caregivers, especially during #CaregiverAwarenessMonth, we see and applaud your incredible work. We recognize that the caregiving journey comes with its own distinct challenges and joys. Dominique shares this advice for caregivers: “Have patience and grace for yourself while you pour your love and energy into a PWS individual. Realize it’s a marathon, not a sprint.” This month and every day, we see the dedication, compassion, and resilience of every caregiver. Check out our engagement guide to learn how to support families living with PWS: support4pws.com #CaregiverAwarerness #PWSAwareness #Support4PWS
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It’s #CaregiverAwarenessMonth, and we're taking time to highlight and celebrate the unique perspectives, joys and hopes of caregivers in the Prader-Willi syndrome (PWS) community. Every caregiver’s journey is as one-of-a-kind as the person they care for, and their dedication has an immeasurable impact. Dini reflects on how caring for her daughter has transformed her worldview: “Being Ayoni's caregiver helps me put the world into perspective. I am more focused on my fierce prioritization of family, health, and joy.“ Join us in supporting and celebrating #PWS caregivers this month, and every day. Read our Caregiver Awareness month blog post to learn more: https://bit.ly/47ttM9m #CaregiverAwarerness #PWSAwareness #Support4PWS
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This #CaregiverAwarenessMonth, we recognize the profound strength and dedication of caregivers, especially in the #PraderWilliSyndrome community. Every #PWS journey is different, and we celebrate the individuality and impact of each caregiver and the community that surrounds them. Your dedication makes a difference every day. Discover more about #PWS at Support4PWS.com and download our toolkit to spread awareness in your community. #PWSAwareness #Support4PWS
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Every day at Soleno, we show up for the Prader-Willi syndrome (PWS) community and for each other. 🎃 This Halloween, we showed up in costume too. Yes, one teammate even came dressed as our CEO! Can you guess the rest? #PWSAwareness #Support4PWS #Soleno
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October was one to remember. From the Long Beach Marathon to Cocktails for a Cause and more, we celebrated, connected, and advocated alongside the Prader-Willi syndrome (PWS) community all month long. Here’s a look back at some of our favorite moments! #Support4PWS #PWSAwareness
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Congratulations to Prader-Willi Syndrome Association | USA on an incredible Prader Silly comedy show! We’re proud to sponsor an event that brought laughter and impact together, raising support for advocacy, family programs, and research across the PWS community.
What an unforgettable night at Prader Silly! 🎤 This past Wednesday (October 22), laughter filled Zanies Comedy Club Nashville as Lucy Sinsheimer and Aaron Weber brought together family, friends, PWS community members, and a star-studded lineup of comedians to celebrate their daughter, Olive (1), and raise awareness for Prader-Willi syndrome. Thanks to their incredible efforts, more than $182,000 was raised to support PWSA | USA’s advocacy, family support, and research programs (amazing)! To Lucy and Aaron, the talented comedians, Zanies, the sponsors, and everyone who made this unforgettable night possible — thank you for turning laughter into lasting hope for families and individuals affected by PWS. 📸 Photos by Taylor Brown (@word.doc_brown) 👉 Prader Silly Photo Gallery: https://lnkd.in/ghCAGC7X 💜 Donate to Prader Silly and help keep the hope going: www.pradersilly.com
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This past weekend, we were honored to host Prader-Willi syndrome (PWS) Community Day at the Please Touch Museum in Philadelphia. Families came together to learn, recharge, and connect through caregiver sessions, creative activities, and community networking. Thank you to everyone who joined us and to our partners, Prader-Willi Syndrome Association | USA and Foundation For Prader-Willi Research, for helping make this special day possible. Together, we continue to build understanding, support, and hope within the PWS community. #Support4PWS #PWSAwareness
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At Soleno, we are committed to developing therapies for rare diseases with great unmet needs, starting with Prader-Willi syndrome (PWS). Every step we take is driven by the belief that even the rarest conditions deserve meaningful solutions and lasting hope. Because for every rare disease, there are families, caregivers, and communities who should never feel left behind. Learn more about our work at https://bit.ly/4l1tXgY #PWSAwareness #RareDisease #PWSCommunity
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